Is Remicade the solution for Crohn’s Disease? I have been running that question through my mind a lot lately. I was put on Remicade just over a year ago and I have not experienced any improvement with my Crohn’s
2016 was a very frustrating year for me. I had surgery in December 2015 for a blockage (my third surgery). Once they got in they found other problems that needed repair, so that was a good thing to have the surgery.
My expectations were pretty high that I would do great, my health was going to improve and I could live a normal life. Unfortunately that was not the case…
To my dismay my symptoms turned for the worse. Every pain, days of nausea and diarrhea came back with a vengeance! I was in misery and feeling worse than before the surgery!
I am going to pause here for a moment to take a deep breath before going to the next stage. …and to say I hope fellow Crohn’s sufferers can relate to what I have shared so far. …
My introduction to Remicade was uneventful. But prior to starting the Remicade infusions my life was miserable. On one of my visits to my gastroenterology doctor I finally broke down.
When asked “How are you doing” I looked him straight in the eye and told him “My Crohn’s is back” and he knew I was serious. Come on, I have had this disease since I was a teenager and now I am 68 years old. I KNOW my body!
So the tests began…he needed to verify there was active Crohn’s .
- Colonoscopy (twice)
- CT Scan
- Blood Work
- Stool Sample
Everything came back showing mild inflammation…my problem was a mystery. The doctor’s recommendation was Remicade.
Now we all have busy lives , but sitting there as the medicine slowly dripped into my system for TWO HOURS tested my patience. Two weeks, four weeks, six weeks and finally 8 weeks and I was now on my permanent schedule
Now with being on Remicade for a year, I get to experience a new set of symptoms.
- Extreme Exhaustion and I mean EXTREME exhaustion
- Sleepless nights
- Lack of interest to do anything
Any improvement with my Crohn’s? Absolutely Not!
As of today my Remicade treatments will be changed to every 6 weeks, still searching for answers and finding none, but to stay on Remicade. Should I try a different type of medicine like Humira? Maybe, but the doctor wants me to stay with my present program.
To say I am happy and content with how my health is presently, would be lying. This is an ongoing battle that has no cure, the only option available is to control the flare ups as best as you can.
I know there are many of us who have Crohn’s and have stories you can share It is important to open up and bring those stories forward. There is no reason to struggle alone or feel disconnected with this disease.
Seek help, leave a comment and give yourself encouragement. We can and will overcome this dreadful disease
In closing, is Remicade the answer for Crohn’s Disease? I don’t have an answer for that, but please I would like to hear from other Remicade patients your thoughts on this.